When you have a chronic illness you sometimes have to pick and choose what activities you can do. Even though we may want to say yes to every little event we are asked to, we know sometimes we just have to say no. It's not that we want to decline. It really is a matter … Continue reading Why I may decline the invite.
I was diagnosed with my rare illness at 2. I was lucky to be diagnosed at such a young age. First and foremost, it probably saved my life, but it also saved me from knowing what life was like before a diagnosis. To me, Marfan syndrome was always known. I can’t remember a day I … Continue reading What to say to a person that is newly diagnosed with a rare disorder.
Basket of Lemons is proud to introduce guest author, Cindy Moody. Read her story below. Yesterday, October 24, 2016, marks my 5th anniversary of ending my addiction to self-harm. My name is Cindy Moody and I’m the mother of two handsome teenage boys. I married the love of my life, Jason, in 1999 in … Continue reading God Gave Me Strength
I am usually awoken in the middle of the night by a ornery toddler or a sweet kindergartener. From scary dreams to a simple cup of water, my nights are interrupted by two cute little boys. Some nights I am woken by swift kicks, and flailing arms. My husband is having another nightmare. He has been … Continue reading A Never Remembered Nightmare
Here at Basket of Lemons we are always looking for guest authors. Our goal is to share how we make the best in any situation. Taking the lemons life gives you and make lemonade. Topics: Medical disorders- chronic illness, genetic disorders, rare disease, awareness to a specific condition Parenting Life If you would like to … Continue reading How did you make lemonade?
Finding the good in each situation, and making lemonade from the lemons that seem to get hurled at you can be challenging. Over the course of the past few months I have been putting real effort into making the best out of each negative incident. It's like I am coaching myself to look at the bright … Continue reading Finding the Good
Yesterday I got the phone call I have been anticipating, but dreading for six months. In March of this year I had my annual appointment at Children's Hospital with my cardiologist. I know the routine of a EKG, Echo, and a nice chat with my doctor. My doctor sent me on my merry little way … Continue reading Take Care of Yourself
I am the mom you see at the school our kids attend together. I am the mom you sit with at T-ball practice. I am the mom you attend church with. Did you notice anything? Did you see me almost fall asleep during a sermon? Did you see me not holding my toddler? His dad … Continue reading Being a mom with a rare disease
“You don’t look like you have anything wrong with you.” This could be one of the most destructive statements to a person living with an invisible illness. I have had it said to me thousands of times when I share my rare illness with others. Usually said with the best of intentions, but it can … Continue reading “…but you look normal.”