The season of traditions is upon us. Christmas, of course, has many traditions, but people incorporate their own traditions into this important holiday. My family's one big tradition, now going into its third generation, is baking. I vowed to never take on this task. To me, it wasn't worth the late nights, or the effort. I … Continue reading A Holiday Tradition
Today I had my annual cardiology appointment. I do not go to your typical cardiology clinic, but one located at a local children's hospital. At the age of two it was discovered that I had a heart murmur and sent to this same hospital. I was then diagnosed with Marfan Syndrome and seen there throughout my childhood. Thirty … Continue reading I’m 32, and I still see a doctor at a children’s hospital.
With the holidays just around the corner, and the stresses of finding that perfect gift to give, I decided to do a post for a special group people. When you have a rare disorder like Marfan syndrome your days can be complicated, and painful. Life can be made slightly uncomplicated with certain products that many Marfan … Continue reading Six Gift Ideas For The Person With Marfan Syndrome.
In the past few days some big news has developed in the Marfan Syndrome world. One of the Marfan Foundation representatives decided to continue his dream of becoming a professional basketball player. Isaiah Austin had big dreams of becoming an NBA superstar, but those dreams were cut short when it was discovered that he has … Continue reading When Isaiah Austin Decided To Play Basketball Again…..
Today, my husband and I celebrate 10 years of marriage. I never imagined this is where we would be 10 years after walking down the aisle. I do not know what I had in mind for the first decade of our union, but it has been a fantastic surprise. We have had our ups and downs. … Continue reading Ten Years Later…