Today I had my annual cardiology appointment. I do not go to your typical cardiology clinic, but one located at a local children’s hospital. At the age of two it was discovered that I had a heart murmur and sent to this same hospital. I was then diagnosed with Marfan Syndrome and seen there throughout my childhood.
Thirty years later, I am still being seen at the same clinic. I have changed drastically, and so has the hospital. This hospital has seen my tears, seen my pain, and witnessed me overcome so many challenges. With having four major operations, and countless appointments, this hospital has become a huge part of my life. I couldn’t put a number on the amount of hours I have spent in this one place.
It’s a little odd that I have this emotional connection to a building. This place saved my life and gave me hope for a bright future. I think this is common with chronically ill patients; our memories are entangled with places like hospitals and doctor offices. We spend so much of our time in these places that they become woven into our lives.
I am lucky to still be able to be seen at the adult congenital heart defect clinic. When I turned 18 I worried that I would have to become an actual adult and find another cardiologist, but was reassured that I would be able to continue my care with the same clinic that diagnosed me.
What’s it like going to a children’s hospital as a 32-year-old adult? Its pretty fantastic. I can defiantly appreciate all the bright colors and child themed decor. However, for us adult congenital heart patients, our patient room’s are pretty basic. We do get some of the best doctors in the nation handling our care.
Time for my Echocardiogram
These appointments can last for hours; today it was almost three.
First step is getting an echocardiogram. This is like an ultrasound for your heart. These take about 15-20 minutes. The perk is they usually have the latest Disney movie playing. Today it was HGtv. I was a little bummed about that part.
Next its time for an EKG. This is a pretty basic test that records the electrical activity of the heart. It takes more time to place the leads on your body then it does for the actual test.
Waiting on the doctor to review both tests, and see other patients, makes up the bulk of the appointment. I do not recommend taking a toddler with you to these appointments because of the wait time, but I do recommend practicing on your selfie game.
Hospitals have great light for selfies.
I saw the doctor and everything looked great. I wouldn’t need to be seen for another year.
Last but not least, some lab work to check my blood thinner. I was off to the lab, and hopefully a lot less waiting this time.
My totally rad band-aid.
Finally done with everything, my husband and I left to head back home. Another year’s appointment done. On a serious level, I can’t complain about how long these appointments take. These appointment are the key to sustaining my life. As inconvenient as a three-hour doctor appointment can be; its worth every single minute.
Basket of Lemons 